HARMONIzation and integrative analysis of regional, national and international Cohorts on primary Sjögren’s Syndrome (pSS) towards improved stratification, treatment and health policy making
HARMONIzation and integrative analysis of regional, national and international Cohorts on primary Sjögren’s Syndrome (pSS) towards improved stratification, treatment and health policy making . Creates and maintains a platform with open standards and tools, designed to enable secure storage,governance, analytics, access control and controlled sharing of information at multiple levels along with methods to make results of analyses and outcomes comparable across centers and sustainable through Rheumatology associations. ICCS developed software tools and mechanisms enabling authorized users to further examine their cohort data, align terminologies being used with international standards and codifications (efficiently dealing with both structural and semantic mismatches), express their data using a common data model and securely store them in separate data sources that share a common schema and vocabularies.
Project website: https://alphamed-medical.com/harmonicss/
